Well, I got the call this afternoon. I will begin chemo Thursday. As I mentioned before I had a PICC line inserted for just this occasion, well, not, just for this occasion, but for unfettered acess to my veins!
I will start with a very mild sort of chemo, so I was told. I always have someone with me when the talking gets heavy because I tend to just tune out.......This chemo will not cure me. It will will be more to ease my pain and suffering and prolong my life. I will be hooked up to a chemo pump for about 46 hours. This is supposedly a VERY mild form of chemo and will cause very minor nausea and running to the bathroom, and possibly mouth sores. HHHmmm, mouth sores, must remember to get more popsickles. And I think someone said I do it again in two weeks....playing ignorant and having my team with me helps me cope with the situation.
I am feeling much better than when I posted last and I don't actully think this is the beginning ofthe end, buit I still want to die in my sleep, tee hee. I am being treated at the hospital at which I am employed by physicians and nurses I am familiar with and it has made all the difference in the world.
There is nothing like seeing a familiar face when you go to get your central line inserted, or when you are going for your millionth blood draw. I have no complaints.
I know a lot of "work people" read this blog as well and quite frankly I don't know how I could get through this without you. I can't thank you enough all enough. I could name names but I would rather protect the innocent..ever thoughtful me.......
This is where it is all really unfair. I move to Vriginia, in the prime of my life, luck out finding this great job and group of people and them KABOOOOOOM!!!!!! CANCER!!!!!! The bic "C"
I had never been sick a day in my life except sinus trouble. SO IT JUST GOES TOO SHOW YOU DON'T TAKE A MINUTE FOR GRANTED!
I will let you all know how the Chemo goes....oh, and by the way, the oncologist says I will not lose my hair. I actually shaved my head once, but that is, ahem, another story altogehter, Tee Hee. If I do lose my hair I will knit up a couple of Chemo Caps! Knitting is a passion of mine for those of you who did not already know. See, I told some of you I was not the buttoned down startched shirt tie wearing preppy that I appear to be........
Rest beckons, Sweet dreams for all...................All for now............
I've been revisiting some of the blogs I've read in the past, but for some reason haven't visited in a while...and I'm floored. I wish you well on your journed to whatever is "next". I only hope it's not as uncomfortable as it has been...best
Posted by: sean | August 31, 2005 at 12:22 PM
Hi again Max! I'm so thankful that you are feeling a little bit better. I guess some of those God-pestering prayers are working. God's ears are quite tired, I'm sure. But He hasn't heard the last of me yet. Tee hee!
Here's another cyber hug for you! I hope everything goes well for you with the chemo.
Posted by: Bonnie (Boy George Girl) | August 31, 2005 at 12:50 PM
Glad it's a little better. Glad you're not gonna loose your hair...although, for as much shit as you've given me in the past about being bald.... I wish that your "Big C" would loop around and turn into a "Big O"... we all need more of those. Keep your spirits up. I was confused about people thinking you were all about buttoned down starched shirts...seems like I remember you NEVER even ironing a shirt...and more times than others picking your work clothes up off your bedroom floor from one of the many piles. Funny how life changes!
Love, Keith
Posted by: Keith Brown | August 31, 2005 at 02:05 PM
Max, I've been wanting to comment for a while and am afraid of saying something sappy and maudlin and just generally unhelpful. I feel for you, and I appreciate you taking the time to write about your experience - as a hospice volunteer, I often meet people when they're not in any condition to talk about what's happened up until the point we meet, and while we're together, it's not really the time for me to ask questions. It's about what the person I'm with needs, not my curiosity or desire to know more about them.
So, thanks, and after an anti-maudlin fashion, here is my favorite joke: "Two psychic friends walk into each other on the street. One says to the other, "You're fine. How'm I doin'?"
Posted by: Donna | August 31, 2005 at 04:54 PM
Iron a shirt? Isn't that a conservative/republican thing to do--I mean have their wive's do????? I was so glad to read this post from you as you sound a lot stronger and not as miserable as the other day. I want you to stay standing on that corner as long as possible--HMMM That really doesn't sound OK--What I mean to say is that I want you to turn the corner to see the leaves change and it sounds like you are on the move! I hope tomorrow is a piece of cake! JGF
Posted by: Jennifer Ford | August 31, 2005 at 06:44 PM
Sorry for this, but until I get the hang of this for Max. I am just adding a quick update here.
Max is back in the hospital for some pancreas issues. He should be home by the weekend. The Chemo is on hold until we clear this hurdle. JoAnn has been a true sport through her first hospital experience. Some of you know the humor (at least now it is humorous) in Max and the hospital. JoAnn was not quite prepared for the Max and his nursing expertise. His quick talking with the doctors and nurses left poor JoAnn in the dust--and some "misunderstanding" as Jack, Terry, and Matt got the multiple phone calls. I think she will excel next time! Gotta find some humor in all this.
Max was on some good stuff for pain last night. He managed to tell me how his day was 3 times and to go pick JoAnn up at the airport (she had just left the room!).
Keep Max in your prayers, he really enjoys the comments you leave here.
Posted by: Mike | September 01, 2005 at 08:16 AM
Hey Max...happy September. The leaves should begin turning soon and my wish is that you shall see the brilliance of the colors. I had a dream about you last night (guess that means you're really stuck in my brain, huh?). In it, you were patiently trying to help me knit a sweater, but since I suck at knitting, it wasn't going well. One must know one's weak points, and complex knitting patterns just ain't in me. But I did manage to complete several of those cotton dish clothes from the pattern you gave me. I actually thought I was pretty hot sh#@ finishing those off, and everyone on my Christmas list got one from me last year. I'm now working on a blanket for my baby granddaughter, using the same Chinese wave stitch. That I can handle. Hope to finish it before she's in kindergarten :-) Hang in, Max...your strength is an inspiration. My 2nd wish for you is a kind and gentle round of chemo. If such a thing exists, you certainly deserve it.
Posted by: Pat | September 01, 2005 at 09:51 AM
Max,
Just got word that you had this blog going, reminds me vaguely of the Soviet bioweapons researcher who accidently infected himself with the Marburg virus, but as a dedicated researcher kept meticulous notes for his colleagues on what was happening to him. ;->
I forced myself to return to the USA after spending two wonderful but hectic weeks without hearing the voice of the idiot Bush coming at me from various media sources.
Maybe I should have been lighting candles at the 7 (!) cathedrals and 2 churches we visited, but I think the money was probably better spent on all the beer, fish & chips, Cornish pasties, and donner kebabs we consumed along the way. Plus, those greedy @$#s wanted GBP 4.50 just to get in the church!! Not to mention the additional charge to take pictures.
I'm glad you're not going to lose you hair with the chemo - my father-in-law looked like Yoda (his ears stick way out and he has a sloping forehead) with all these little whisps. He took to wearing stocking caps and looked like an old, white, honkey rapper. At least you could get away with a bald head; women just end up wearing those awlful wigs. Gorgeous hair on an emaciated frame looks ridiculous. Someone should come up with a line of wigs with lanky, dull hair to match the rest of the person.
As for the gut, there's this great website for Axford Corsets, a company located in England that not only produces some really great women's corsets, but also has two models for "gentlemen."
Enough for now; you'll tire just reading all this. Hope you're hooked up to the "poison pot" soon. Love & Kisses.
Posted by: Debragena | September 01, 2005 at 03:18 PM
Hey Max,
Just thought I'd take a minute to let you know that I'm still pestering God on your behalf. I keep you in my thoughts.
Lynn
Posted by: Lynn Relyea | September 01, 2005 at 03:18 PM
Hey Max, I have a photo of our scrabble board from a night in Tallahassee when you, Jim and I stayed up playing dirty Scrabble. If I can figure out how to scan it, I'll email it to you. Some of the creative words: FUQUM, UDIGBALLS, GROPT. I'm pretty sure alcohol might've been involved.
Keep Smiling when you can. Love, Diane
Posted by: Diane Iniguez | September 01, 2005 at 05:36 PM
Hey Max:
Sorry about the glitch in your scheduling for chemo. I don't know if you are glad for the reprive or ticked cuz the ole pancreas decided to get its share of attention, just at this time!
I think about you quite often-feeling as helpless as the rest of your friends, but know that my thoughts and prayers are aimed at Virginia. Keep up your fighting spirit; you are an inspiration to all of us.
Laney
Posted by: Laney | September 01, 2005 at 06:50 PM
(In Eric Cartman voice) Hey Max! I'm wishing you happah days and lots of cheezy poofs!
Posted by: Bonnie (Boy George Girl) | September 01, 2005 at 09:40 PM
Love and kisses from Georgia. I will be in DC in a month. Maybe I can bring you Georgia sunshine and grits. We are all thinking about you and including you in our prayers. Mary
Posted by: Mary Morris | September 10, 2005 at 11:34 AM
I am also getting ready to start this long road of chemo and the pump, I am 66 and started to just say what the H? let me go. Then when I looked around at all the people trying to support me in this I just could not at least give it my all to the breaking point and I do feel I am not far from that. I have had the resection of the cecum and know it is in the liver so hopefully when we go on this next journey it will help bring some sign of hope.
Posted by: Zora | November 24, 2006 at 12:40 PM